Team Charles

Elizabeth Dodson / GO FARther Together!

Raising money to fund the creation of a treatment for Charles and the rest of the ARID1B-RD community in hopes of improving their future.

  • $5,625

    Raised

  • $5,000

    Goal

  • 16

    Supporters

Recent Transactions

  • Catherine Capilongo

    $200.00 / 126 days ago

    Go Team Charles! Love you guys 🥰

  • Webber Roscher

    $25.00 / 129 days ago

    Sending hugs and hoping to have an opportunity to catch up soon!

  • Matthew Offen

    $200.00 / 129 days ago

  • Michelle Brady

    $100.00 / 130 days ago

  • Caroline Boyd

    $100.00 / 131 days ago

  • Mequet Werlin

    $50.00 / 131 days ago

    We love the Dodson family and Charles!!

  • Laura Cureton

    $100.00 / 131 days ago

    Sending lots of love and support for Team Charles!!

  • Ashley Kollme

    $200.00 / 131 days ago

  • Cathy Milward

    $100.00 / 131 days ago

    Go get em Charles! Love your friends/cousins in Lexington Ky - canter and Henry

  • Mary Underwood

    $1,000.00 / 131 days ago

    😘 We love you Charles!

  • Anonymous

    $750.00 / 131 days ago

    Charles is, indeed, a truly amazing special young man. My heart fills with love every time I see and am with him There is no better feeling than to be hugged by him.

  • Anonymous

    $1,500.00 / 131 days ago

    Charles is one of the best kiddos we know. The beach and riptide 2 next gen gang wouldn’t be the same without him. He’s the best pyramid topper we could ask for and always brings the best attitude to all our crazy days.

  • Kathleen Anderson

    $250.00 / 131 days ago

  • Keli Elkins

    $500.00 / 131 days ago

  • Sarah Franey

    $50.00 / 131 days ago

    Sending love!!

  • Anonymous

    $500.00 / 131 days ago

    Charles is a champion, and the Dodson Family is spectacular. We’re happy to support this important research.

About Team Charles

As many of you know, a few days shy of his second birthday, Charles was diagnosed with Coffin-Siris Syndrome due to a de novo mutation in the ARID1B gene. At the time he was the 824th diagnosis in the world. A challenge of having a rare disease is that there isn't a medical roadmap to follow and there isn't enough critical mass to get funding for research. Coming together as FAR families we have achieved so much in the past 2 years - and we cannot thank you all enough for your generous support! Thanks to your generosity, there are now 4 new ARID1B-RD research projects, a natural history study, global conversations between researchers and scientists about routes to treatment for our children and almost $3million dollars invested in ARID1B-RD work thanks to your donations and the power of the FAR community! We are also hosting the world’s first ARID1B-RD scientific roundtable next weekend, bringing together for the first time leading international scientists and researchers specifically to discuss charting a path to new treatments for ARID1B-RD. And today, we have the opportunity to make an even grater impact. Every cent, euro and dollar we raise up to $50k will be matched and if we can raise the full $100k we will be able to launch the FARther Together Grants to support the development of new ARID1B treatment pathways!