Evie’s Team

Emily Adams / GO FARther Together!

Raising money to fund the creation of a treatment for Everly and thousands of children living with ARID1B-RD

  • $400

    Raised

  • $15,000

    Goal

  • 7

    Supporters

Recent Transactions

  • Katie Reed

    $50.00 / 90 days ago

  • Kathryn Ely

    $50.00 / 90 days ago

    Proud of you and all you do for Evie!!! The Ely’s

  • AnnMarie Thompson

    $50.00 / 90 days ago

  • Katia Rice

    $50.00 / 90 days ago

  • Phyllis Talbot

    $100.00 / 90 days ago

  • Laina Moore

    $50.00 / 90 days ago

    So thankful to have you in our lives! Go Evie! xo - The Moore Family

  • Sara Harpe

    $50.00 / 90 days ago

    So proud of Evie and how much she has learned this year!! Nana and Papa Buck love this sweet girl!

About Evie’s Team

This is our Evie girl! In every cell in her little body, a rare mutation causes the amount of a single protein (ARID1B) to be only half of what it should be. This mutation affects almost every aspect of her life- speech, communication, learning, understanding, and motor skills- and creates huge barriers on her way to living an independent life. Technologies that can correct Evie's genetic impact already show enormous potential in other syndromes. They may immeasurably improve her life and allow her to realize so many more of her future dreams. These technologies require adaptations and experimentation to prove their capability for Evie's gene. It is an expensive endeavor. We have already taken the first steps- identifying the appropriate modalities, finding the right researchers, and financing the initial stages of development. Now we are turning to you for help to take this forward and quickly create treatment for Evie and thousands of children with the same syndrome. We know that these kids can move mountains and we want to help them do just that. The simple truth is that we cannot take this journey alone. Your support in this endeavor is greatly appreciated!