Standard evie

Evie's Friends

Emily Adams / FAR Forward Together

Raising money to fund the creation of a treatment for Everly and thousands of children living with ARID1B-RD

  • $4,880

    Raised

  • $10,000

    Goal

  • 58

    Supporters

Recent Transactions

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    Nicole Camp

    $75.00 / 275 days ago

    So happy to donate so such a great cause! ❤️❤️

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    Chris Keller

    $250.00 / 275 days ago

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    Bonnie Best

    $500.00 / 275 days ago

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    Andrea Kerr

    $25.00 / 275 days ago

    Ev, you will go so far and do such great things and our contribution is in honor of all the hard work you do to be the best version of you! Love to see you thriving! ♥️👏🙌

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    Anonymous

    $50.00 / 276 days ago

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    Kathleen Bottomley

    $50.00 / 276 days ago

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    Lori Nelson

    $25.00 / 281 days ago

    Love you all so very much!! Evie you are amazing!!

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    Beth Johnson

    $100.00 / 283 days ago

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    Casey Castagna

    $30.00 / 283 days ago

    Love you, Evie!

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    Amy Giannetti-Gillespie

    $25.00 / 283 days ago

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    Jan Block

    $50.00 / 283 days ago

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    Katie Reed

    $35.00 / 284 days ago

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    Gail Rudel

    $25.00 / 284 days ago

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    Katie Moses

    $5.00 / 284 days ago

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    Anonymous

    $25.00 / 284 days ago

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    Anonymous

    $50.00 / 284 days ago

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    Betsy Harpe

    $100.00 / 284 days ago

    Xoxo

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    Clifford Harpe

    $100.00 / 284 days ago

    I hope that Evie and all children will have the best in their lives. The best treatment, the most love, and the brightest future.

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    Dawn McConnell

    $50.00 / 284 days ago

    My beautiful niece. God gave a precious gift when he blessed the world with you. We love you so much!

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    Anonymous

    $100.00 / 284 days ago

    You are beautiful and make our world so special! Cheering for you all the way!!

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    Angela Bush

    $200.00 / 284 days ago

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    Megan Bennett

    $150.00 / 284 days ago

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    Carol Smith

    $100.00 / 284 days ago

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    Jaime Castle

    $100.00 / 284 days ago

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    Teri Milhollin

    $100.00 / 284 days ago

    For Everly💖

About Evie's Friends

This is our Evie girl! In every cell in her little body, a rare mutation causes the amount of a single protein (ARID1B) to be only half of what it should be. This mutation affects almost every aspect of her life- speech, communication, learning, understanding, and motor skills- and creates huge barriers on her way to living an independent life. Technologies that can correct Evie's genetic impact already show enormous potential in other syndromes. They may immeasurably improve her life and allow her to realize so many more of her future dreams. These technologies require adaptations and experimentation to prove their capability for Evie's gene. It is an expensive endeavor. We have already taken the first steps- identifying the appropriate modalities, finding the right researchers, and financing the initial stages of development. Now we are turning to you for help to take this forward and quickly create treatment for Evie and thousands of children with the same syndrome. We know that these kids can move mountains and we want to help them do just that. The simple truth is that we cannot take this journey alone. Your support in this endeavor is greatly appreciated!