Cece's Tribe

Rachael Vitalo / FAR Forward Together

Raising money to fund the creation of a treatment for Cece and thousands of children living with ARID1B-RD

  • $1,525

    Raised

  • $10,000

    Goal

  • 20

    Supporters

Recent Transactions

  • Marsha Cooke

    $200.00 / 183 days ago

    This is for Ezzie (Ezra). Though we've never met ... I have adored him from afar hearing his story from his mom. Anything I can do to continue the amazing research of this foundation ... I am in!

  • Julie Nauman

    $25.00 / 387 days ago

  • Amanda Murphy

    $25.00 / 769 days ago

  • Nicholas Wolfe

    $100.00 / 770 days ago

  • Stephanie Osborne

    $20.00 / 787 days ago

  • Julia Sassa

    $25.00 / 791 days ago

    Keep fighting Cece!

  • Danielle Sassa

    $25.00 / 793 days ago

    ❤️

  • Stacy Smith

    $25.00 / 794 days ago

    Cece you’re such an inspiration!! Keep defying those odds ♥️

  • Katie Cushing

    $100.00 / 794 days ago

  • Tina Spinken

    $200.00 / 794 days ago

    You go Cece!

  • Marykatherine Doyle

    $100.00 / 794 days ago

  • Ashley Toner

    $200.00 / 795 days ago

  • Carmela Sassa

    $40.00 / 796 days ago

  • Meghan Newberry

    $25.00 / 797 days ago

    You’re amazing Cece! You inspire me and so many others!

  • Deborah Dickinson

    $50.00 / 797 days ago

    We love our beautiful CeCe! She is a rockstar. We support CeCe’s tribe, her journey and all research that can improve the lives of our precious children.

  • Brittany Sturgis

    $40.00 / 797 days ago

    Rachael is a rock star and such a strong advocate for finding a cure for ARD1B-RD; I'm happy to help in any way that I can!

  • Mary Gannon

    $100.00 / 797 days ago

    Wishing for all children the joy of good health…thanking all who are working on this and other illnesses a future filled with success…prayer plumes rising

  • Jenn Norris

    $100.00 / 797 days ago

  • Dave Hayes

    $100.00 / 797 days ago

  • Ashley

    $25.00 / 797 days ago

About Cece's Tribe

This is our sweet and spunky Cece! In every cell in her little body, a rare mutation causes the amount of a single protein (ARID1B) to be only half of what it should be. This mutation affects almost every aspect of her life - speech, communication, learning, understanding, and motor skills - and creates huge barriers on her way to living an independent life. Technologies that can correct Cece’s genetic impact already show enormous potential in other syndromes. They may immeasurably improve her life and allow her to realize so many more of her future dreams. These technologies require adaptations and experimentation to prove their capability for Cece’s gene. It is an expensive endeavor. We have already taken the first steps - identifying the appropriate modalities, finding the right researchers, and financing the initial stages of development.  Now we are turning to you for help to take this forward and quickly create treatment for Cece and thousands of children with the same syndrome.  We know that Cece can move mountains, and we would love nothing more than to help her do just that. The simple truth is we cannot take this journey alone. Your support in this endeavor is greatly appreciated!