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Cece's Tribe

Rachael Vitalo / FAR Forward Together

Raising money to fund the creation of a treatment for Cece and thousands of children living with ARID1B-RD

  • $1,300

    Raised

  • $10,000

    Goal

  • 18

    Supporters

Recent Transactions

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    Amanda Murphy

    $25.00 / 337 days ago

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    Nicholas Wolfe

    $100.00 / 338 days ago

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    Stephanie Osborne

    $20.00 / 355 days ago

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    Julia Sassa

    $25.00 / 359 days ago

    Keep fighting Cece!

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    Danielle Sassa

    $25.00 / 361 days ago

    ❤️

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    Stacy Smith

    $25.00 / 362 days ago

    Cece you’re such an inspiration!! Keep defying those odds ♥️

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    Katie Cushing

    $100.00 / 362 days ago

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    Tina Spinken

    $200.00 / 362 days ago

    You go Cece!

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    Marykatherine Doyle

    $100.00 / 362 days ago

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    Ashley Toner

    $200.00 / 363 days ago

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    Carmela Sassa

    $40.00 / 364 days ago

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    Meghan Newberry

    $25.00 / 365 days ago

    You’re amazing Cece! You inspire me and so many others!

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    Deborah Dickinson

    $50.00 / 365 days ago

    We love our beautiful CeCe! She is a rockstar. We support CeCe’s tribe, her journey and all research that can improve the lives of our precious children.

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    Brittany Sturgis

    $40.00 / 365 days ago

    Rachael is a rock star and such a strong advocate for finding a cure for ARD1B-RD; I'm happy to help in any way that I can!

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    Mary Gannon

    $100.00 / 365 days ago

    Wishing for all children the joy of good health…thanking all who are working on this and other illnesses a future filled with success…prayer plumes rising

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    Jenn Norris

    $100.00 / 365 days ago

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    Dave Hayes

    $100.00 / 365 days ago

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    Ashley

    $25.00 / 365 days ago

About Cece's Tribe

This is our sweet and spunky Cece! In every cell in her little body, a rare mutation causes the amount of a single protein (ARID1B) to be only half of what it should be. This mutation affects almost every aspect of her life - speech, communication, learning, understanding, and motor skills - and creates huge barriers on her way to living an independent life. Technologies that can correct Cece’s genetic impact already show enormous potential in other syndromes. They may immeasurably improve her life and allow her to realize so many more of her future dreams. These technologies require adaptations and experimentation to prove their capability for Cece’s gene. It is an expensive endeavor. We have already taken the first steps - identifying the appropriate modalities, finding the right researchers, and financing the initial stages of development.  Now we are turning to you for help to take this forward and quickly create treatment for Cece and thousands of children with the same syndrome.  We know that Cece can move mountains, and we would love nothing more than to help her do just that. The simple truth is we cannot take this journey alone. Your support in this endeavor is greatly appreciated!